Experiencing or caring for someone with Long COVID can be confusing, challenging, and frustrating. About 1 in 4 adults with Long COVID have reported experiencing significant limitations in their daily activity. People experience Long COVID in different ways and may:
Taking steps to listen to a person's lived experience and talking with compassion can help you better understand and address their needs. CDC's How Right Now campaign provides helpful tools for navigating these types of conversations with empathy.
Long COVID as a disabilityResearch shows that people who develop Long COVID may experience new or ongoing symptoms that can significantly affect their daily activities. These symptoms can cause health complications that can even result in a disability. Resources are available.
Caring for children, including adolescents, with Long COVIDAlthough Long COVID appears to be less common in children than in adults, children can develop Long COVID. Recognizing and identifying Long COVID symptoms can be difficult, especially for children. Young children may have even more trouble describing the symptoms or problems they are experiencing. The best way to prevent your child from developing Long COVID is to protect them from getting COVID-19.
Long COVID can affect your child’s daily activities Resources are available to help you and your child.If your child has Long COVID, it may impact their ability to attend school, complete schoolwork, or participate in other normal activities such as:
School administrators, counselors, teachers, and nurses can work with families and healthcare professionals to provide learning or other accommodations for children with Long COVID. Resources are available to you and your child.
Caring for adults with Long COVIDResearch shows adults are more likely than children to get Long COVID. Long COVID symptoms and conditions can affect adults' ability to perform many of their normal daily activities and cause physical, emotional, and financial stress.
The unknown and long-term nature of Long COVID can worsen this stress. Taking steps to understand the patient's unique experiences might make them feel less isolated.
Long COVID impact on the workforce Long COVID can affect your work life.Some estimates suggest that more than 1 million U.S. adults are out of work at any given time due to Long COVID. Additional impacts of Long COVID for adults in the workforce include:
Research shows workers with Long COVID report higher rates of many functional disabilities and worse measures of well-being, compared to workers who did not have Long COVID.
Resources are available for employees and employers to better understand how Long COVID may affect them or their work.
Help Manage Long COVID Everyday strategiesLong COVID is different for everyone, and people experiencing Long COVID may find different activities, treatments, or strategies to be helpful. Some people find journaling about their Long COVID symptoms and what makes them better or worse to be helpful, but you should use whatever strategies work best for your health. There are support groups that can help people experiencing Long COVID and their caregivers. Talk to your healthcare provider about creating a personal medical management plan to help improve your symptoms and quality of life.
Talking to your doctor Talk to your doctor about your Long COVID experience.Long COVID is a complex chronic illness with symptoms that can be difficult to understand, talk about, or explain. People with these hard-to-explain symptoms may:
These can cause a delay in your diagnosis and receiving the appropriate care or treatment. It is important to understand any Long COVID symptoms or conditions and to seek care to improve your quality of life. Talk to your healthcare provider if you think you or your child has Long COVID.
What to expect for your healthcare appointmentHealthcare providers are still learning about Long COVID. It may take more than one appointment to evaluate potential Long COVID symptoms and determine a helpful diagnosis. Your provider may:
Treatment for Long COVID is specific to management of your symptoms and may be different from others. Clinical trials are underway to learn more about how Long COVID affects different people and possible treatments. Preparing for an appointment can make a difference in your Long COVID evaluation, diagnosis, and treatment. Consider different questions about your Long COVID symptoms or conditions and review these tips [PDF – 1 Page] to help prepare for your healthcare provider appointment.
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