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A survey of U.S. public perspectives on facial recognition technology and facial imaging data practices in health and research contexts

. 2021 Oct 14;16(10):e0257923. doi: 10.1371/journal.pone.0257923. eCollection 2021. A survey of U.S. public perspectives on facial recognition technology and facial imaging data practices in health and research contexts

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A survey of U.S. public perspectives on facial recognition technology and facial imaging data practices in health and research contexts

Sara H Katsanis et al. PLoS One. 2021.

. 2021 Oct 14;16(10):e0257923. doi: 10.1371/journal.pone.0257923. eCollection 2021. Affiliations

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Facial imaging and facial recognition technologies, now common in our daily lives, also are increasingly incorporated into health care processes, enabling touch-free appointment check-in, matching patients accurately, and assisting with the diagnosis of certain medical conditions. The use, sharing, and storage of facial data is expected to expand in coming years, yet little is documented about the perspectives of patients and participants regarding these uses. We developed a pair of surveys to gather public perspectives on uses of facial images and facial recognition technologies in healthcare and in health-related research in the United States. We used Qualtrics Panels to collect responses from general public respondents using two complementary and overlapping survey instruments; one focused on six types of biometrics (including facial images and DNA) and their uses in a wide range of societal contexts (including healthcare and research) and the other focused on facial imaging, facial recognition technology, and related data practices in health and research contexts specifically. We collected responses from a diverse group of 4,048 adults in the United States (2,038 and 2,010, from each survey respectively). A majority of respondents (55.5%) indicated they were equally worried about the privacy of medical records, DNA, and facial images collected for precision health research. A vignette was used to gauge willingness to participate in a hypothetical precision health study, with respondents split as willing to (39.6%), unwilling to (30.1%), and unsure about (30.3%) participating. Nearly one-quarter of respondents (24.8%) reported they would prefer to opt out of the DNA component of a study, and 22.0% reported they would prefer to opt out of both the DNA and facial imaging component of the study. Few indicated willingness to pay a fee to opt-out of the collection of their research data. Finally, respondents were offered options for ideal governance design of their data, as "open science"; "gated science"; and "closed science." No option elicited a majority response. Our findings indicate that while a majority of research participants might be comfortable with facial images and facial recognition technologies in healthcare and health-related research, a significant fraction expressed concern for the privacy of their own face-based data, similar to the privacy concerns of DNA data and medical records. A nuanced approach to uses of face-based data in healthcare and health-related research is needed, taking into consideration storage protection plans and the contexts of use.

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Conflict of interest statement

JT discloses a consulting relationship with Genetika, and JKW discloses employment with Geisinger. The authors have declared that no other competing interests exist.

Figures

Fig 1. Privacy concerns regarding the use…

Fig 1. Privacy concerns regarding the use and sharing of facial images and facial imaging…

Fig 1. Privacy concerns regarding the use and sharing of facial images and facial imaging data in health research.

Respondents were asked the following question: “There are many different types of facial imaging, and the ability to identify an individual from these different types varies. In health research, names and other identifying information are removed from facial imaging to preserve the privacy of the individual. However, reidentification is sometimes possible. Imagine that you are participating in health research involving facial images and facial imaging data. Based on what you know, how concerned are you about your privacy if the following are used and shared as part of that health research?” Proportion of respondents indicating they were very concerned (dark orange), somewhat concerned (light orange), not too concerned (light blue), and not at all concerned (dark blue) are displayed along with item nonresponses (gray).

Fig 2. Acceptability of facial recognition technologies…

Fig 2. Acceptability of facial recognition technologies in eight healthcare scenarios.

For each scenario, respondents…

Fig 2. Acceptability of facial recognition technologies in eight healthcare scenarios.

For each scenario, respondents reported whether the use case was acceptable (blue) or unacceptable (orange) or reported being unsure (gray) about the (un)acceptability of FRT.

Fig 3. Willingness to participate in a…

Fig 3. Willingness to participate in a hypothetical precision health study.

Respondents were presented with…

Fig 3. Willingness to participate in a hypothetical precision health study.

Respondents were presented with this vignette: “For the next set of questions, imagine that you are asked to participate in a health study that seeks to understand a wide range of human diseases and conditions. The researchers will study your medical records (such test results and information about diseases and conditions); will collect a DNA sample to study your DNA information; and will collect images of your face to study along with any medical images and related information in your medical records. The researchers will not share study resources that could identify someone easily. Each participant will be given a unique study ID number.” Shades of blue denote those definitely (dark) and probably (light) willing to participate. Shades of orange denote those definitely (dark) and probably (light) not willing to participate. Gray shading denotes those not sure about participation.

Fig 4. Comfort with a precision health…

Fig 4. Comfort with a precision health study using medical records, facial images, DNA, and…

Fig 4. Comfort with a precision health study using medical records, facial images, DNA, and related information.

Blue shading denotes the proportion of respondents who expressed they were very (dark blue) and somewhat (light blue) comfortable with a study’s use of each of the three types of research resources. Orange shading denotes the proportion of respondents who expressed they were very (dark orange) and somewhat (light orange) uncomfortable with a study’s use of each of the three types of research resources.

Fig 5. Relative privacy concerns when information…

Fig 5. Relative privacy concerns when information is collected for research purposes.

The darkest shade…

Fig 5. Relative privacy concerns when information is collected for research purposes.

The darkest shade of blue denotes equal concern for the three types of research resources (medical records, DNA, and facial images). The second darkest shade of blue denotes those whose concerns for medical records were stronger (more) than their concerns about either facial images or DNA. The second lightest shade of blue denotes those whose concerns for facial images were stronger (more) than their concerns about either medical records or DNA. The lightest shade of blue denotes those whose concerns for DNA were stronger (more) than their concerns about either medical records or facial images.

Fig 6. Hypothetical willingness to participate and…

Fig 6. Hypothetical willingness to participate and opt-out preferences for a precision health study.

The…

Fig 6. Hypothetical willingness to participate and opt-out preferences for a precision health study.

The darkest shade of blue denotes willingness to participate fully including with the three types of research information (medical record, DNA, and facial imaging information). The second darkest shade of blue denotes those who would opt out of the facial imaging component. The second lightest shade of blue denotes those who would opt out of the DNA component. The lightest shade of blue denotes those who would opt out of both the DNA and facial imaging component.

Fig 7. Preferred management of precision health…

Fig 7. Preferred management of precision health research resources.

The darkest blue shading denotes the…

Fig 7. Preferred management of precision health research resources.

The darkest blue shading denotes the most open of the three options, that resources should be unrestricted and made available to as many researchers as possible to answer as many research questions as possible even if that increases privacy risks to participants. The moderate blue shading denotes that research resources should be controlled and made available to qualified researchers to answer any research questions reasonably related to human health. The lightest blue shading denotes that research resources should be restricted and made available only to a few researchers and only to answer research questions stated at the beginning of the study to reduce privacy risks to participants.

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