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Showing content from https://pubmed.ncbi.nlm.nih.gov/29524014/ below:

Development of the Cancer Survivor Profile-Breast Cancer (CSPro-BC) app: patient and nurse perspectives on a new navigation tool

Affiliations

• ¹ Murtha Cancer Center, Walter Reed National Military Medical Center, Bethesda, MD, 20889, USA.
• ² Department of Medical and Clinical Psychology, Uniformed Services University of the Health Sciences, Bethesda, MD, 20814, USA.
• ³ Murtha Cancer Center, Walter Reed National Military Medical Center, Bethesda, MD, 20889, USA. jcancersurvivorship@gmail.com.
• ⁴ Department of Medical and Clinical Psychology, Uniformed Services University of the Health Sciences, Bethesda, MD, 20814, USA. jcancersurvivorship@gmail.com.
• ⁵ Preventive Medicine and Biometrics, Uniformed Services University of the Health Sciences, Bethesda, MD, 20814, USA. jcancersurvivorship@gmail.com.

• PMID: 29524014
• DOI: 10.1007/s11764-017-0668-2

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Amanda Gehrke et al. J Cancer Surviv. 2018 Jun.

• ¹ Murtha Cancer Center, Walter Reed National Military Medical Center, Bethesda, MD, 20889, USA.
• ² Department of Medical and Clinical Psychology, Uniformed Services University of the Health Sciences, Bethesda, MD, 20814, USA.
• ³ Murtha Cancer Center, Walter Reed National Military Medical Center, Bethesda, MD, 20889, USA. jcancersurvivorship@gmail.com.
• ⁴ Department of Medical and Clinical Psychology, Uniformed Services University of the Health Sciences, Bethesda, MD, 20814, USA. jcancersurvivorship@gmail.com.
• ⁵ Preventive Medicine and Biometrics, Uniformed Services University of the Health Sciences, Bethesda, MD, 20814, USA. jcancersurvivorship@gmail.com.

• PMID: 29524014
• DOI: 10.1007/s11764-017-0668-2

Item in Clipboard

Purpose: Despite advancements in care, cancer survivors continue to report unmet needs following active cancer treatment. The Cancer Survivor Profile-Breast Cancer (CSPro-BC) application (app) was developed to help address these needs, using breast cancer survivors (BCS) as a pilot group. This paper describes the app development, BCS and nurse perceptions of the app, and changes made based on this feedback.

Methods: The CSPro-BC app was developed for use on an iPad and includes (1) administration of a 15-20-min survey assessing 18 needs, (2) generation of a profile of needs, relative to a reference group of BCS (median 2 years post-treatment), and (3) provision of problem-specific online resources. Perceptions of the app were evaluated using both quantitative and qualitative approaches. Feedback was elicited from nurse navigators and BCS. BCS were recruited until the point of saturation.

Results: BCS (N = 11) were middle-aged and a median of 2.4 months post active treatment. Structured questionnaires indicated the following: survey covered meaningful problem areas, profile display was clear, and nurse's involvement was helpful. Follow-up interviews (2 weeks later) revealed that BCS shared their profile with others, but most BCS did not use the resources and those who did thought there were too many. Nurses (N = 3) said the app increased appointment time, but prompted them to discuss areas often not covered in typical BCS follow-up.

Conclusions: Feedback by end users directly informed revision of the app.

Implications for cancer survivors: The CSPro-BC app has been optimized based on BCS feedback.

Keywords: Breast cancer; Cancer survivor; Communication; Information technology; Navigation; Unmet needs.

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• Translation and perceptions of the French version of the Cancer Survivor Profile-Breast Cancer (CSPro-BC): a tool to identify and manage unmet needs.

  Tremblay D, Bilodeau K, Durand MJ, Coutu MF. Tremblay D, et al. J Cancer Surviv. 2019 Apr;13(2):306-315. doi: 10.1007/s11764-019-00752-2. Epub 2019 Mar 23. J Cancer Surviv. 2019. PMID: 30904981

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