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Showing content from https://pubmed.ncbi.nlm.nih.gov/29429041/ below:

An iPhone Application Intervention to Promote Surveillance Among Women with a BRCA Mutation: Pre-intervention Data

Affiliations

• ¹ Cancer Genetics Risk Assessment Program, 8402 Harcourt Rd #324, St. Vincent Health, Indianapolis, IN, 46260, USA. sacohen@stvincent.org.
• ² Department of Communication Studies, Northwestern University, Evanston, IL, USA.
• ³ Cancer Genetics Risk Assessment Program, 8402 Harcourt Rd #324, St. Vincent Health, Indianapolis, IN, 46260, USA.

• PMID: 29429041
• DOI: 10.1007/s10897-018-0224-x

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Stephanie A Cohen et al. J Genet Couns. 2018 Apr.

• ¹ Cancer Genetics Risk Assessment Program, 8402 Harcourt Rd #324, St. Vincent Health, Indianapolis, IN, 46260, USA. sacohen@stvincent.org.
• ² Department of Communication Studies, Northwestern University, Evanston, IL, USA.
• ³ Cancer Genetics Risk Assessment Program, 8402 Harcourt Rd #324, St. Vincent Health, Indianapolis, IN, 46260, USA.

• PMID: 29429041
• DOI: 10.1007/s10897-018-0224-x

Item in Clipboard

Women with BRCA mutations, at significantly increased risk for breast and ovarian cancer, do not consistently adhere to management guidelines due to lack of awareness and challenges tracking appointments. We developed an iPhone application (app) to help BRCA carriers manage their surveillance. We explored baseline awareness and adherence to surveillance guidelines and analytic data from 21 months of app use. Descriptive statistics were calculated on responses (N = 86) to a survey about surveillance awareness and practices. The majority were aware of breast surveillance guidelines, but only one third were aware of ovarian surveillance guidelines. In practice, the majority reported a clinical breast exam within 6 months, just over half reported a mammogram and breast MRI in the last year, and under half reported ovarian surveillance in the last year. Nearly 50% reported difficulty remembering appointments. Although only 69 received access codes, 284 unique users attempted to enter the app, which was visible in the iTunes store but only available to those with a study code. Evaluation of analytic data demonstrated user engagement with study participants accessing the app 427 times over the 21-month time period (range 2-57; mean = 6.28). Results indicate participants were more likely to know screening guidelines than practice them. There was interest in the app and users were engaged, suggesting app value. We will send a follow-up survey after 18 months of app use for additional evaluation and feedback.

Keywords: BRCA carriers; Health communication; Surveillance adherence; mHealth.

PubMed Disclaimer

• Risk of breast cancer after a diagnosis of ovarian cancer in BRCA mutation carriers: Is preventive mastectomy warranted?

  McGee J, Giannakeas V, Karlan B, Lubinski J, Gronwald J, Rosen B, McLaughlin J, Risch H, Sun P, Foulkes WD, Neuhausen SL, Kotsopoulos J, Narod SA; Hereditary Ovarian Cancer Clinical Study Group. McGee J, et al. Gynecol Oncol. 2017 May;145(2):346-351. doi: 10.1016/j.ygyno.2017.02.032. Epub 2017 Mar 14. Gynecol Oncol. 2017. PMID: 28314588

• Systemic Barriers to Risk-Reducing Interventions for Hereditary Cancer Syndromes: Implications for Health Care Inequities.

  Mittendorf KF, Knerr S, Kauffman TL, Lindberg NM, Anderson KP, Feigelson HS, Gilmore MJ, Hunter JE, Joseph G, Kraft SA, Zepp JM, Syngal S, Wilfond BS, Goddard KAB. Mittendorf KF, et al. JCO Precis Oncol. 2021 Nov 3;5:PO.21.00233. doi: 10.1200/PO.21.00233. eCollection 2021. JCO Precis Oncol. 2021. PMID: 34778694 Free PMC article. Review. No abstract available.

• Longitudinal adherence to breast cancer surveillance following cancer genetic testing in an integrated health care system.

  Knerr S, Guo B, Wernli KJ, Mittendorf KF, Feigelson HS, Gilmore MJ, Jarvik GP, Kauffman TL, Keast E, Liles EG, Lynch FL, Muessig KR, Okuyama S, Veenstra DL, Zepp JM, Wilfond BS, Devine B, Goddard KAB. Knerr S, et al. Breast Cancer Res Treat. 2023 Oct;201(3):461-470. doi: 10.1007/s10549-023-07007-w. Epub 2023 Jul 20. Breast Cancer Res Treat. 2023. PMID: 37470892 Free PMC article.

1. 1. JAMA. 2017 Jun 20;317(23 ):2402-2416 - PubMed
2. 1. Ann Surg Oncol. 2012 Jun;19(6):1738-44 - PubMed
3. 1. Am J Med Genet A. 2003 Apr 30;118A(3):201-9 - PubMed
4. 1. Int J Cancer. 2004 Nov 10;112(3):357-64 - PubMed
5. 1. Eur J Hum Genet. 2011 May;19(5):500-6 - PubMed

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