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Patients' and Health Care Providers' Opinions on a Supportive Health App During Breast Cancer Treatment: A Qualitative Evaluation

doi: 10.2196/cancer.5334. Patients' and Health Care Providers' Opinions on a Supportive Health App During Breast Cancer Treatment: A Qualitative Evaluation Carla H van Gils  1 David J Bruinvels  2 Carmen C van der Pol  3 Arjen J Witkamp  3 Sieta Sijtsema  3 Yvette Jonasse  4 Rhodé M Bijlsma  5 Margreet G Ausems  6 Annelies M Bos  7 Desirée H van den Bongard  8 Helena M Verkooijen  9

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Patients' and Health Care Providers' Opinions on a Supportive Health App During Breast Cancer Treatment: A Qualitative Evaluation

Danny A Young-Afat et al. JMIR Cancer. 2016.

doi: 10.2196/cancer.5334. Authors Danny A Young-Afat  1 Carla H van Gils  1 David J Bruinvels  2 Carmen C van der Pol  3 Arjen J Witkamp  3 Sieta Sijtsema  3 Yvette Jonasse  4 Rhodé M Bijlsma  5 Margreet G Ausems  6 Annelies M Bos  7 Desirée H van den Bongard  8 Helena M Verkooijen  9 Affiliations

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Abstract

Background: Health apps are increasingly being used in clinical care and may hold significant theoretical potential. However, they are often implemented in clinical care before any research has been done to confirm actual benefits for patients, physicians, and researchers.

Objective: This study aimed to explore experiences of patients and health care providers with the use of a supportive breast cancer app during the first 6 months following diagnosis, in terms of benefits for clinical practice and research purposes.

Methods: Between June 2013 and April 2014, breast cancer patients of all ages were invited shortly after diagnosis to use a supportive breast cancer app, and were followed for 6 months. Patients were asked to use the app at their own convenience. In-depth interviews were conducted regularly with patients and their medical team (ie, physicians and nurses) to evaluate their experiences.

Results: A total of 15 patients aged 30-63 years participated. The medical team consisted of 7 physicians and 3 specialized breast cancer nurses. Out of the 15 patients, 12 (80%) used the app to obtain information on breast cancer and treatment. A total of 11 out of 12 patients (92%) evaluated this information as useful. All 15 patients used the app to record consultations with practitioners, and 14 (93%) found this useful. Symptom registration was used by 8 out of 15 patients (53%), and was found useful by 4 out of these 8 patients (50%). Overall, 14 out of 15 patients (93%) would recommend the app to other patients. The app, in particular the recording function, was rated as useful by 9 out of 10 medical professionals (90%), and they reported that it did not increase consultation time. These 9 professionals would recommend the app to their patients.

Conclusions: This evaluation of a supportive health app shows positive experiences among patients and their medical teams. Based on experiences in this study, patients may need to be actively encouraged to regularly register symptoms within health apps to generate sufficient patient-reported app data for use in clinical practice and scientific research.

Keywords: PROs; breast cancer; health apps; patient-reported outcomes; quality of life.

©Danny A Young-Afat, Carla H van Gils, David J Bruinvels, Carmen C van der Pol, Arjen J Witkamp, Sieta Sijtsema, Yvette Jonasse, Rhodé M Bijlsma, Margreet G Ausems, Annelies M Bos, Desirée H van den Bongard, Helena M Verkooijen. Originally published in JMIR Cancer (http://cancer.jmir.org), 07.06.2016.

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Conflict of interest statement

Conflicts of Interest: David J Bruinvels is Medical Director at Px HealthCare, the company that created and owns the OWise breast cancer app. He is currently not employed by Px HealthCare and is a minor shareholder of Px HealthCare. The first and last author vouch for the integrity of this manuscript.

Figures

Figure 1

Screenshot of the OWise app…

Figure 1

Screenshot of the OWise app (day overview).

Figure 1

Screenshot of the OWise app (day overview).

Figure 2

Screenshot of the OWise app…

Figure 2

Screenshot of the OWise app (week overview).

Figure 2

Screenshot of the OWise app (week overview).

Figure 3

Example of a graphical overview…

Figure 3

Example of a graphical overview of patient-reported outcomes as obtained from the OWise…

Figure 3

Example of a graphical overview of patient-reported outcomes as obtained from the OWise app's symptom registration function. The levels of nausea, sleep quality, and fatigue range from minimum (0) to maximum (100). A vertical line corresponds with the input of data by the patient. This patient received chemotherapy between August 2013 and December 2013. This data was provided by Px HealthCare with written permission from the patient.

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