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Showing content from https://pubmed.ncbi.nlm.nih.gov/20490636/ below:

Pre-counseling education for low literacy women at risk of Hereditary Breast and Ovarian Cancer (HBOC): patient experiences using the Cancer Risk Education Intervention Tool (CREdIT)

Affiliations

• ¹ Department of Anthropology, History, and Social Medicine, University of California, San Francisco, San Francisco, CA 94143 - 0128, USA. gjoseph@cc.ucsf.edu

• PMID: 20490636
• PMCID: PMC2944955
• DOI: 10.1007/s10897-010-9303-3

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Galen Joseph et al. J Genet Couns. 2010 Oct.

• ¹ Department of Anthropology, History, and Social Medicine, University of California, San Francisco, San Francisco, CA 94143 - 0128, USA. gjoseph@cc.ucsf.edu

• PMID: 20490636
• PMCID: PMC2944955
• DOI: 10.1007/s10897-010-9303-3

Item in Clipboard

The Cancer Risk Education Intervention Tool (CREdIT) is a computer-based (non-interactive) slide presentation designed to educate low-literacy, and ethnically and racially diverse public hospital patients at risk of Hereditary Breast and Ovarian Cancer (HBOC) about genetics. To qualitatively evaluate participants' experience with and perceptions of a genetic education program as an adjunct to genetic counseling, we conducted direct observations of the intervention, semi-structured in person interviews with 11 women who viewed CREdIT, and post-counseling questionnaires with the two participating genetic counselors. Five themes emerged from the analysis of interviews: (1) genetic counseling and testing for breast/ovarian cancer was a new concept; (2) CREdIT's story format was particularly appealing; (3) changes in participants' perceived risk for breast cancer varied; (4) some misunderstandings about individual risk and heredity persisted after CREdIT and counseling; (5) the context for viewing CREdIT shaped responses to the presentation. Observations demonstrated ways to make the information provided in CREdIT and by genetic counselors more consistent. In a post-session counselor questionnaire, counselors' rating of the patient's preparedness before the session was significantly higher for patients who viewed CREdIT prior to their appointments than for other patients. This novel educational tool fills a gap in HBOC education by tailoring information to women of lower literacy and diverse ethnic/racial backgrounds. The tool was well received by interview participants and counselors alike. Further study is needed to examine the varied effects of CREdIT on risk perception. In addition, the implementation of CREdIT in diverse clinical settings and the cultural adaptation of CREdIT to specific populations reflect important areas for future work.

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• Patient and genetic counselor perceptions of in-person versus telephone genetic counseling for hereditary breast/ovarian cancer.

  Jacobs AS, Schwartz MD, Valdimarsdottir H, Nusbaum RH, Hooker GW, DeMarco TA, Heinzmann JE, McKinnon W, McCormick SR, Davis C, Forman AD, Lebensohn AP, Dalton E, Tully DM, Graves KD, Similuk M, Kelly S, Peshkin BN. Jacobs AS, et al. Fam Cancer. 2016 Oct;15(4):529-39. doi: 10.1007/s10689-016-9900-x. Fam Cancer. 2016. PMID: 26969308 Free PMC article. Clinical Trial.

• Development and pilot testing of a training for bilingual community education professionals about hereditary breast and ovarian cancer among Latinas: ÁRBOLES Familiares.

  Vadaparampil ST, Moreno Botero L, Fuzzell L, Garcia J, Jandorf L, Hurtado-de-Mendoza A, Campos-Galvan C, Peshkin BN, Schwartz MD, Lopez K, Ricker C, Fiallos K, Quinn GP, Graves KD. Vadaparampil ST, et al. Transl Behav Med. 2022 Jan 18;12(1):ibab093. doi: 10.1093/tbm/ibab093. Transl Behav Med. 2022. PMID: 34255089 Free PMC article.

• Effective Referral of Low-Income Women at Risk for Hereditary Breast and Ovarian Cancer to Genetic Counseling: A Randomized Delayed Intervention Control Trial.

  Pasick RJ, Joseph G, Stewart S, Kaplan C, Lee R, Luce J, Davis S, Marquez T, Nguyen T, Guerra C. Pasick RJ, et al. Am J Public Health. 2016 Oct;106(10):1842-8. doi: 10.2105/AJPH.2016.303312. Epub 2016 Aug 23. Am J Public Health. 2016. PMID: 27552275 Free PMC article. Clinical Trial.

• Culturally Targeted Video Improves Psychosocial Outcomes in Latina Women at Risk of Hereditary Breast and Ovarian Cancer.

  Hurtado-de-Mendoza A, Graves KD, Gómez-Trillos S, Carrera P, Campos C, Anderson L, Luta G, Peshkin BN, Schwartz MD, Cupertino AP, Gonzalez N, Sheppard VB. Hurtado-de-Mendoza A, et al. Int J Environ Res Public Health. 2019 Nov 29;16(23):4793. doi: 10.3390/ijerph16234793. Int J Environ Res Public Health. 2019. PMID: 31795362 Free PMC article.

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